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Lawsuits seek full coverage for eating
disorder treatment

(June 2007 Issue)

By Elinor Nelson

Fed up with insurance companies' limiting hospitalization for eating disorders to 30 or 35 days when doctors are saying their children need longer stays for a chance at a cure and cognizant that anorexia nervosa has the highest mortality rate of any mental illness, families are starting to sue the insurance companies. Three class action suits have been filed in Federal District Court in New Jersey, one against Aetna and two against Horizon Blue Cross Blue Shield of New Jersey.

The cases turn on the interpretation of "biologically-based mental illness" (BBMI), for which New Jersey state law mandates more comprehensive benefits than for non-BBMI's. The law says that a BBMI is caused by a "biological disorder" of the brain resulting in a "clinically significant or psychological syndrome or pattern," and includes a non-exclusive list of covered psychiatric conditions and illnesses. Anorexia is not on the list and Aetna and Horizon interpret the law to exclude anorexia.

Daniel Emmer, Horizon's manager of public relations, states that "Horizon's position is that the legislature, and not the court, should decide what benefits the statute mandates." Cynthia Michener of Aetna states in an email that Aetna covers treatments related to eating disorders subject to any limits in the member's benefits plan. "Some plan designs may limit certain types of coverage…to create affordable health benefit plans that employers can purchase to provide the maximum amount of coverage for as many employees as possible. "

The plaintiffs' attorney in one of the cases, David Mazie of Mazie, Slater, Katz & Freeman, LLC of Roseland, N.J., asserts that eating disorders are BBMI's, and "in fact, we have clients who are sisters - one aspect, I think, that it is biologically based." His complaint quotes Scott Crow, M.D., University of Minnesota professor of psychiatry and immediate past president of the Academy of Eating Disorders as "somewhat surprised that such antiquated notions persist in the face of strong and consistent evidence for the biological basis of these disorders."

Wade Berrettini, M.D., Ph.D., professor of psychiatry and director of the University of Pennsylvania's Center for Neurobiology and Behavior is quoted in the complaint as stating, "Dozens of researchers across the world are making an extraordinary effort to find genes which predispose individuals to anorexia nervosa… because identical and fraternal twins studies…prove that genes influence anorexia nervosa risk."

The National Association for Anorexia Nervosa and Associated Disorders (ANAD) emphatically agrees, and its Web site (www.anad.org) excerpts a letter from Thomas R. Insel, M.D., director of the National Institute of Mental Health, stating, "Research tells us that anorexia nervosa is a brain disease with severe metabolic effects on the entire body. While the symptoms are behavioral, this illness has a biological core with genetic components, changes in brain activity and neural pathways that are currently being studied."

Darcy Gans, ANAD's associate director of media relations, explains that ANAD gets "many calls from families with children in inpatient programs, but caps on their inpatient days means that they are discharged prematurely, long before they're recovered. Some of them are uninsured, but some of them have insurance, but it's too little too late."

Mary Elsner, J.D., ANAD's director of advocacy and government affairs, says that while national mental health parity legislation is pending in Congress, for now, these cases rely on each state's insurance law. Some states mandate more benefits than others.

ANAD's Web site cites a survey of 109 eating disorder specialists around the country concluding that 96.7% "believe their patients with anorexia are put in life threatening situations because of mandated early discharge."