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Decision expected in Rosie D. v. Romney case
(October 2005 Issue)

By Elinor Nelson

It's time that Massachusetts provides its most junior Medicaid recipients with appropriate psychiatric services and treatment, claim the plaintiffs in Rosie D. v. Romney, a class action lawsuit argued before the U.S. District Court in August. A decision should be imminent, states plaintiff attorney Cathy Costanzo, assistant director of the Center for Public Representation, a public interest law firm representing people with disabilities.

The aim of the lawsuit is to make sure that children with severe psychiatric disabilities have a chance to grow up in their communities and not in institutions. The case was brought in Oct. 2001 by nine plaintiffs ages five to 16 who had been hospitalized or at risk of hospitalization because of a lack of community mental health services.

Plaintiffs charge that the state is violating federal law by failing to abide by Medicaid's mandate to screen and diagnose eligible children and furnish appropriate medically necessary preventative and rehabilitative treatment.

"What we most want is to see things change for the children and their families," says Costanzo, "and for them to get the services they've needed and to which they're entitled. For many, the difference will be living normal lives with their families at home or living in institutions."

The class includes approximately 3,000 children who are Medicaid-eligible and who suffer from emotional, behavioral or psychiatric disorders. The diagnoses, Costanzo says, include pervasive developmental disorder, mental retardation, developmental disabilities, bipolar disorder and psychotic disorders.

The plaintiffs claim that hundreds of class members have been detained inappropriately in psychiatric facilities, congregate care settings or totally denied access to services and some children have been boarded in hospital emergency rooms or pediatric wards.

The plaintiffs' fiscal expert says that Massachusetts wastes more than $22 million per year on unnecessary hospitalization and suggests that the Commonwealth could redirect available funding to serve more than 1,000 children annually in home-based programs.

Plaintiffs are asking for home and community-based services including trained behavioral staff to support a child at home, in school and in after-school or treatment settings for as many hours as needed to ameliorate the child's condition. Plaintiffs say that other states, including Rhode Island, Vermont, Maine and New Jersey, fund such services.

"Until children are four or five they get [such services from] Early Intervention," explains Costanzo. "We would love to see a model based on Early Intervention. They make determinations regarding what a child needs to be successful for his or her physical, mental or psychological development. The families' and child's needs for services don't change - it's just the funding that changes." While Massachusetts offers home and community-based services through two programs, plaintiffs say that these projects are limited and fail to serve children in 341 of the state's communities.