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'Stuck kids' at root of lawsuit
(July 2005 Issue)

By Phyllis Hanlon

In Oct. 2001, nine plaintiffs ages five to 16 filed a lawsuit, now known as Rosie D. vs. Romney, that alleges Massachusetts officials failed to provide comprehensive and medically necessary behavioral health treatment mandated under federal Medicaid legislation. This April, that lawsuit came to trial.

David Matteodo, executive director of the Massachusetts Association of Behavioral Health Systems, was called to testify at the trial. He says that the Commonwealth has made some strides in moving children into community-based acute treatment services. "However, there is still an average 70 kids stuck in the hospital for many days, weeks and months," he says. "It is not good clinically for kids who don't require an acute level of care to remain hospitalized." Inpatient care continues to be expensive, in spite of increased reimbursement from the state and Matteodo says that hospitals have consistently advanced the position of moving children into community-based and/or home care.

Frank Laski, executive director of the Mental Health Legal Advisors Committee (MHLAC), points out that statewide efforts to move children into community-based services is laudable, even though some individuals still wait inordinate amounts of time for residential, foster or home care. He cites the decrease in the number of "administratively necessary days," a term the state applies to pediatric inpatient length of stay and says that Massachusetts has streamlined the process between discharge and admission to a residential facility.

"But there is some fluctuation in the numbers and the decrease in the number of days. This is still a major problem," Laski says. "At one time there were between 120 and 130 stuck kids. There is still an indication that there is a tremendous overuse of hospitals and residential facilities. Our primary goal is to have the state provide statewide home-based services for kids who are mentally disturbed through Medicaid."

According to the Rosie vs. Romney lawsuit, Rhode Island, Vermont, Maine and Connecticut currently fund community and home-based services as an integral part of their Medicaid programs. These programs include a variety of services such as trained behavioral staff for home, school and after-school settings on an as needed basis; psychiatric and clinical support; professional assessments and crisis intervention, treatment and case management that allow children to remain in the home environment.

Massachusetts falls behind these states, although it has implemented two pilot programs that address pediatric behavioral health needs. A new initiative, Coordinated Family Focused Care, serves 50 children in Springfield, New Bedford, Brockton, Lawrence and Worcester. The grant-funded Mental Health Special Program for Youth was launched in 1998 and serves 70 children in Cambridge, Somerville, Malden, Medford and Everett. Laski cites dual benefits of these programs. "They prevent hospitalization and provide step-down opportunities," he says.

He says that these programs are based on the Milwaukee wraparound model. "We are looking for state agencies and Medicaid to organize their services to provide intensive services without going into the hospitals," he says. Children in the state's 341 communities without programs must depend on the Massachusetts Behavioral Health Partnership for appropriate services.

According to Laski, the trial was expected to continue through the first week of June. "That's the period when the judge gets the post-trial submissions," he says. "We expect a decision before the summer is over." Plaintiffs anticipate expanded home-based behavioral health services statewide as a result of the trial.

In addition to attorneys from MHLAC, lawyers from the Center for Public Representation and the private law firm of Wilmer Cutler Pickering Hale and Dorr LLP are representing the plaintiffs in this case.